Skylar Marie Jones
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Skylar Marie Jones

Skylar Marie Jones

Skylar Marie Jones

Skylar Marie Jones is our beautiful little girl who was born in November of 2009 and diagnosed with Spinal Muscular Atrophy (SMA) type 1 in the beginning of 2010. Unfortunately, there is no cure for SMA and our sweet girl passed away in our arms in August of 2011 at 21 months old.

As we were finding out that there was something wrong with Skylar, but before we knew the severity of it, my dear friend said, "Most people are like dandelions... they can be tossed in the wind, take root wherever they land, and grow up just fine. However, there are some people in this world who are more like orchids. They need a lot of special care and their surroundings have to be just right for them to survive. Maybe Skylar is an orchid..." So Skylar became our little orchid.

We enjoyed the time we had together on earth and did our best to fill our days with smiles instead of tears. We have faith that Skylar is in Heaven now. I hope she has made friends with the other SMA kids and they are able to do all of the things they couldn't do here beacause of SMA taking away their physical strength. She was such a champ and we are so proud of her for everything she endured. Her sweet spirit continues to bring smiles to those who knew her and loved her. We miss her so much and look forward to the day we can see her again.

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